So I may have been pushing myself a little too hard Saturday by getting up & cooking brunch for us. I didn’t think it would hurt to stand to for 10 or 15 minutes but I was sore the rest of the day. I’m in a lot more pain than I had anticipated from the procedure, just soreness. Mostly a pain in my butt, & not aaron ; )
I was curious how long other people took to fully recover from a lumbar puncture & feel normal. So I looked it up on line & most people said a week. Yikes! I really didn’t think it would be that long but think I didn’t really consider that they took a huge, thick needle & stuck it into my central nervous system for about 20 or 30 minutes.
Medicine is crazy.
I am, however, loving all of this quality time I’m getting to spend with my husband. He has done such an incredible job. I’ll save all of that for another entry though because we’re only 8 days away from our One year wedding anniversary.
Today I was inspired by this :
“I am yours for all eternity. I am the Alpha and the Omega: the One who is and was and is to come. The world you inhabit is a place of constant changes-more than your mind can absorb without going into shock. Even the body you inhabit is changing relentlessly, in spite of modern science’s attempts to prolong youth and life indefinitely. I, however, am the same yesterday, today, and forever. Because I never change, your relationship with Me provides a rock-solid foundation for your life. I will never leave your side. You have nothing to fear, because I am with you for all time and throughout eternity. Jesus”
From the Devotional “Jesus Calling” by Sarah Young
Im at my parents house resting up while aaron gets a break tonight. I feel a little sore in my lower back but everything went smoothly today. All we found out was that the pressure in my spinal fluid is pretty elevated. All of the other results will take a little while to get. The fluid samples they took today have to be sent to labs & clutures have to be grown & lots of stuff that i know nothing about. but I did find out lots & lots about what kind of wedding the assistant to the neurologist who did my spinal tap’s had & she found out lots & lots about mine & aarons wedding.
i also, did get to sit & watch the whole thing on a screen while it was happening- which i didnt think i would have the guts to do. so high five me next time you see me for doing that! if you know me, you know thats a big deal.
Monday we’ll go in for the MRI of my brain. I’m guessing we’ll go in to the nuerologist for the results at the end of all the tests.
Today was intense. That is the only word I can use to describe a spinal tap. It is the weirdest sensation I have ever felt. I just hope none of you ever have to through it. It was a little difficult for them to find the right spot to go into because of my severe scoliosis but for the most part everything went smoothly. Everyone was so amazing today. Every one j came into contact with at the hospital treated me with so much kindness & live it was so comforting.
Finally, aaron & I are stunned at the fundrainer efforts that have been put forth by everyone, including people we don’t even know. Our hearts are broken & we are just humbled by the giving spirit of all of you. We pray for each & every one of you who give. Thank you doesn’t seem to suffice, but it is all we have at the moment to give you In return so, thank you.
“Mercy to the needy is a loan to God
& God pays back His loans in full.”
Proverbs 19:17
im praying for all of you. keep praying for aaron & me.
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Laying flat on my back for 2 hours so my spinal fluid doesn’t leak out! Gross! Yaaaay!! (Taken with Instagram at Wellstar Cobb Hospital)
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Apple, oranges, tomatoes, carrots, cauliflower, cucumber, broccolii, peppers, sweet potatoes, bananas, lettuce, & kale all for $15 from my momma & daddy! Thy got us a farmers market basket this week! I can’t wait to tear into it!! (Taken with instagram)
+i honestly havent had it in my heart to sit & put into words what has been on my heart lately because there has been such a mess of emotions.
at first i wondered why me? over & over. what did i do wrong? why did i deserve this? i wondered why this had to happen to us right when things started turning around is this crazy first year of our marriage we’ve had. why did we have to go our with this kind of bang? i kept thinking how unfair it was.
whenever i need true spiritual guidance i always go to my dad, so i was talking to him on the phone about everything that was going on & to sum up what he said it pretty much went to the tune of something like “are you kidding me? wake up girl! you know your God would never do something like that! He’s a loving God, not a punishing God. you just need to search yourself & look inside & figure out what God is trying to teach you & you need to have FAITH.”
and that is EXACTLY what i needed to do. so as a almost private joke between me & God i opened my bible & read the story about Jesus healing the blind man. there it was, the third verse
“Neither this man nor his parents sinned,” said Jesus, “but this happened so that the works of God might be displayed in him.”
John 9:3
it was plain as day right in front of me. the holy spirit had never moved in me in a way like that before. i peace washed over me like i had never felt before. then there were words that were spoken in my ear over & over
“For your Glory, I will endure…”
its kind of become my battle cry every time i feel like i cant take being sick any more or i get discouraged. there is purpose in this situation. it is to bring glory to the name of Christ & i plan on doing it every step of the way. im doing my very best to stay positive about everything & really soak up every bad & horrible part of this situation & thank Jesus for it because i know its Christ who is carrying me through it, not me- by any means. there is absolutely no way i could do this. how amazing is a savior who can take such a horrible situation & make it something wonderful-beauty from ashes. and im reminded how He has always been there & how i have always been His & how He has always carried me in difficult times, but i just neglected to give God the credit.
im learning what real faith is because mine is being tested daily & God is revealing Himself to me & aaron daily through His word, our family, our friends, & people we dont even know. we are blessed beyond comprehension. i know God will bring us through this. i have faith He wont leave us here. He’ll provide a way. God is able. i love those last three words so so sooo much.
GOD IS ABLE!!
GOD IS ABLE!
GOD IS ABLE!
keep praying. im praying for all of you. im praying that you are touched just as much as i am by this.
im going tomorrow moring for my spinal tap at 8:30am. wish me luck!
+So one of the side effects of the medicine my doctor prescribed me to keep my brain swelling down is weight loss.
I’ve only been on it for a little over a week & I’ve lost 13 pounds.
I didn’t believe it when I got on the scale bc I had just weighed myself before we went to the doctor last week.
I got online & looked into the weight loss effect of the drug & people were saying they were losing 40 or 50 ponds in 2 to 5 months on it. That blows my mind & is a little scary.
This the first time I’ve seen pictures of my husband as a little boy. I’ve fallen even more in love with him now. I can’t even handle it. I have no one to thank but my mother in law. (Taken with instagram)
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